Gene=
tics/Birth
Defects Websites
An Internet Subject Directory is a good place to start your search. One of the best is the Libra= rians Internet Index. Go to “Web Reference” o= n the Mariner library home page, then click on Librarians Internet Index under &#= 8220;Searching Tools”. Search for birth defects or the specific defect by name. You will find many good websites.<= o:p>
Two very=
helpful
individual websites are:
The Marc=
h of
Dimes is an excellent site:
“O=
ur
mission is to improve the health of babies by preventing birth defects,
premature birth, and infant mortality. We carry out this mission throu=
gh
research, community services, education and advocacy to save babies' lives.
March of Dimes researchers, volunteers, educators, outreach workers and
advocates work together to give all babies a fighting chance against the
threats to their health: prematurity, birth def=
ects,
low birthweight.” (Quote from site.)
URL: http://www.marchofdimes.com/=
Your
Genes, Your Health: A Multimedia Guide to Genetic Disorders is a=
nother
very helpful site.
“E=
xcellent
presentations about fragile X syndrome, Marf=
an
syndrome, cystic fibrosis, hemophilia, Duchenne=
/Becker
muscular dystrophy, phenylketonuria (PKU), Hunt=
ington
disease (HD), sickle cell disease, and hemochromatosis=
.
For each disease there are explanations of what it is, what causes it, how =
it
is inherited and diagnosed, video clips of inter=
views
with doctors and patients about what it is like to have the disease, links =
to
more information, and a glossary.” (Quote from LII site)
URL: http://yourgenesyourhealth.org/